Some good news!

Well the past couple of weeks has resulted in some good news for Zach. We met with the neurosurgeon and he is not sure there is a tethered cord. He wants to see him again in February with a better MRI done at that point. It is nice to set that issue aside for at least awhile.

We also met with the cardiologist on Wednesday. Craig and I were fully expecting to begin to discuss specific interventions regarding Zach's heart. We had noticed that Zach's coloring was beginning to change to paler with some blueing around his mouth. We expected his O2 stats to be low 80s maybe even into the 70s. We were amazed when they were even better than the last time we were in the office: mid to upper 90s! Since then his coloring seems to have improved also! That means I have at least another month to help Zach get even bigger. He weighed in at 9lbs 4oz. We are hoping for 10 lbs at his next pediatrician appt in 2 weeks.

Thanks for the prayers! We know God is working and we trust Him!

Waiting for the ball to drop

This is my feeling right now about Zach's situation. It is a hard place to be. Sometimes I find myself throwing a pity party for one, but then I take a deep breath and remind myself that God is in control and I am not. Then I have to remind myself that this is a good thing!

Zach had his 2 month check-up at the pedritrician's office Friday and everything is looking pretty good. We really haven't seen a whole lot of social smiling yet, so we are hoping to start seeing that soon.

Craig and I have also started to notice that Zach's coloring is starting to change slightly. This is to be expected with his heart condition, and is one of the signs that intervention will need to happen sooner than later. We meet with the cardiologist next on the 20th. We are trying to prepare ourselves emotionally for the big decisions that we expect will need to be made regarding Zach's care at that time. *big sigh*

Right now in the quietness of nap time it all doesn't seem real that this is my life. But then the doctor's appointments start up again. And I realize that it is easier to run from appointment to appointment than to sit down and think through what is best for Zach long term.

Well, I am so glad that our appointments are now significantly lessening. Each week now we are having about 1-2 appointments a week, rather than 3-5. I feel now that we are just waiting for heart surgery to happen. I'm guessing it will probably happen sometime near the end of the year. We will be meeting with a neuro surgeon to discuss Zach's probable tethered cord. It does appear to be tethered but hasn't started pulling on his spine yet. This is good news because it means that he is not currently experiencing any pain from it.