I guess I'm just not sure how to proceed with my life. I hate to say it but I feel like I am in a holding pattern.
Tuesday, May 17, 2011
Long term or short term
The planner in me of late has been struggling with the big question mark that is Zachary's life. I feel that I have to prepare myself emotionally for Zachary being with us for a very short time, but the reality is that we really have no idea how long he could be here. It could be weeks or years.
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I don't envy you, Steph. I know this is such a hard reality to wake to each day. Please know you and Craig and your boys are loved and prayed for each day.
ReplyDeleteWOW! I just found your blog after going thru all the any-cephaly facebook pictures, I tracked you down. And now I've read most of your blog, as my kiddos allowed! Wow! My name is Monica. I have 4 children, the youngest Jaron, with MDS nearly 14 months old (I still can't believe we celebrated a birthday for our sweet boy!) You will have to check out my blog when you have a chance. albaughfam.blogspot.com There are WAY too many things we have in common! Only God can do that! Sounds like Zach has a few more complications with his heart etc. but I can relate to SO MANY emotions, health medication complications, appointments, prayers and tears to our sweet Savior. I too am so wishing to see a smile and am not sure if or when it will return. I'd love to "get to know you"! What a precious gift we have been given. Monica Albaugh
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