Genetic testing shows that you have Miller-Dieker Syndrome (MDS), and this explains your lissencephaly and Tetralogy of Fallot. Zach, we likely have some very challenging times ahead. Let's not be anxious about the challenges tomorrow might bring, but rejoice in hope!! Through these times of tribulation, we have hope and that is Jesus Christ!! Zach, we are united with Christ, and this news brings us incredible joy!! Your future redemption will be even sweeter for you. Zach, nobody gets through life without tribulation. It's like the pestilence of old. So, trials are coming in life. We just don't know when we will experience them. Let's not worry about tomorrow and be patient in these days, seeking God constantly and earnestly in prayer. We will ask Him for guidance, peace, strength, and perseverance. We will take comfort knowing that He is listening.
Love,
Daddy
Craig and Steph. I won't lie, my heart aches for you tonight. But I will choose to rejoice, hope, and pray with you for the life our Lord has given to Zachary. We continue to love on you guys from afar.
ReplyDeleteSteph and Craig,
ReplyDeleteThank you for sharing updates on little Zach. What a precious child he is created by God! Please know that we are praying for each of you to feel God's peace during this time. Love you all!
Jewels